Thanks for joining me!
After much deliberation I’ve decided to share my life stories with the intention of being a positive light for those also affected by epilepsy; family members and patients alike.
I joined a few support groups in hopes of connecting with people also looking to share stories, ask questions, and generally have a network of people to encourage and motive each other on a bad day. What I found was that while support groups are helpful for lots of people, it wasn’t what I was looking for. There were also a handful of people who had mentioned leaving because it wasn’t what they were looking for either. I searched for books to read on living with epilepsy, hoping to find just one that was encouraging and inspirational. My searches came up empty, though there are lots of clinical books, that wasn’t what I was looking for.
I felt depressed after checking out the support groups, and I imagine that those who’ve left have felt the same. I didn’t want to see someone’s bloody bitten tongue, surgical wounds, or injuries. I wasn’t looking for a place to complain about my neurologist. I didn’t want to spend my time feeling sorry for myself, or anyone else for that matter. I definitely didn’t want to watch graphic videos of other people experiencing grand Mal seizures, and to tell the truth, I can’t really figure out why anyone would want to watch that. I live that already. Every. Day.
What I hope that I can do is help anyone feeling alone or depressed by being a positive voice for those with epilepsy. Yes, depression comes with the diagnosis and/or the medications. Yes, being postictal is draining and makes you feel sooo tired and sore. Yes, I have missed events. Yes, I’ve argued with my husband after a seizure; and hey, sometimes we argue and it has nothing to do with my epilepsy! I’ve felt frustrated, sad, angry, and depressed but I refuse to let epilepsy and all that comes with it be the definition characteristic of who I am.
Join me on my journey! I promise to keep it real, but also positive and hopefully inspiring.
Good company in a journey makes the way seem shorter. — Izaak Walton